by Kristina DeSantis
Danielle Conway-Mason never had the chance to get to know her father. He died of ALS when she was an infant and everything she knows about him is through pictures and stories. In fact, Danielle never even knew how her father died until she was in high school. Her mother felt alone with the disease. At the time there weren’t any local support groups, patient service programs or Walks to Defeat ALS. No one talked openly about Lou Gehrig’s because it felt like such a hopeless disease.
This is the reason The Walks to Defeat ALS are some important for Danielle and her family. Not only because the Walks spread awareness and raise funds for patient service programs and research, but because it gives them hope and a reason to celebrate. The Walks allow them the opportunity to honor her father’s life. They also celebrate all the exciting progress that has been made. Nearly 30 years after Danielle lost her father, so much has changed. There are support groups to talk about living with ALS and losing a loved one.
Each day we learn more about what causes this devastating disease and we get closer to finding a cure. There is equipment to make everyday life easier on patients and their caregivers. And now we have the Walk to Defeat ALS.
For more information, to register a team for the Walk to Defeat ALS in your region or donate to a Walk team, Click Here.
ALS Association Home Page.
Danielle Conway-Mason never had the chance to get to know her father. He died of ALS when she was an infant and everything she knows about him is through pictures and stories. In fact, Danielle never even knew how her father died until she was in high school. Her mother felt alone with the disease. At the time there weren’t any local support groups, patient service programs or Walks to Defeat ALS. No one talked openly about Lou Gehrig’s because it felt like such a hopeless disease.
This is the reason The Walks to Defeat ALS are some important for Danielle and her family. Not only because the Walks spread awareness and raise funds for patient service programs and research, but because it gives them hope and a reason to celebrate. The Walks allow them the opportunity to honor her father’s life. They also celebrate all the exciting progress that has been made. Nearly 30 years after Danielle lost her father, so much has changed. There are support groups to talk about living with ALS and losing a loved one.
Each day we learn more about what causes this devastating disease and we get closer to finding a cure. There is equipment to make everyday life easier on patients and their caregivers. And now we have the Walk to Defeat ALS.
For more information, to register a team for the Walk to Defeat ALS in your region or donate to a Walk team, Click Here.
ALS Association Home Page.
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